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Showing posts with label retinitis pigmentosa. Show all posts
Showing posts with label retinitis pigmentosa. Show all posts
December 7, 2012
BIRTHDAY GIRL AT 90
Our Mom turns 90 today or as she likes to say (nodding to George Carlin) 32 celsius.
Unconditional love, devotion, determination and great humor.
Lost her vision to the inherited disorder Retinitis Pigmentosa (ruined retinas due to the inability to metabolize vitamin A). Completely blind for the last 30 years.
With equanimity and grace, accepting that which she could not change. Relinquishing the pleasures of the visual arts, live theater and shopping. Mom has never seen most of my books.
Yet still taking great pleasure in music and conversation and family adventures.
Interested in politics, the Franklin Institute Red Tail Hawks and the internet among other things.
In fragile health these last few months.
Celebrating your milestone birthday with all our love, hugs, kisses, gourmet lunch and sweet potato pecan cupcakes with cream cheese icing!!
❤❤ HAPPY BIRTHDAY, DEAR MOM!! ❤❤
January 15, 2012
Spork Maestro
Recently, searched the Net for a combination fork
and spoon eating utensil.
Thought it might help my blind Mom eat more
comfortably.
Discovered the spork.
Familiar to kids and campers.
I wanted one that fit in with regular silverware.
Discovered the ETSY shop bosen / handcrafted
http://www.etsy.com/shop/Bosen
and spoon eating utensil.
Thought it might help my blind Mom eat more
comfortably.
Discovered the spork.
Familiar to kids and campers.
I wanted one that fit in with regular silverware.
Discovered the ETSY shop bosen / handcrafted
http://www.etsy.com/shop/Bosen
Mom's first Bosen made spork, photo ⓒ Bosen 2012, with permission Bosen, the shop proprietor and craftsperson, recycles old worthy teaspoons of "good quality and with character", painstakingly searched for in thrift stores and garage sales. Then careful grinding, sanding and filing transforms them into these useful and unique utensils. Often completing the transformation by engraving a word like "NOURISH" or "Eat" on the stem. Bosen credits trying to eat penne pasta at lunch with a rounded spoon. Studying bronze casting at a foundry at the time encouraged the thought of creating tines on the front edge of the spoon. And it works magnificently! My Mom started raving immediately! Amusingly, she was eating a penne pasta dish at the time. I immediately sent for 2 more of Bosen's sporks for Mom. Now I want some of my own. These 2 Bosen sporks arrived yesterday, photos ⓒ Bosen 2012, with permission When not "sporkifying" spoons, Bosen restores older steel bicycles and finds them new owners in the small town in on the North shore of Monterey Bay in Central California where Bosen lives. Bosen writes, "I am passionate about sustainable human powered transportation which means keeping every last bicycle out of landfills and scrap piles. I make a life of turning beat up, neglected old bicycles into smooth running, useful machines that will serve their owners for decades to come. I suggest you bring along your trusty unique Bosen spork for when you stop for lunch and/or dinner. Enjoy your meal. Thanking its enigmatic, conscientious creator/ recycler. |
Labels:
crafts,
etsy,
family,
favorite things,
food,
handmade,
retinitis pigmentosa,
spork
May 8, 2011
Happy Mother's Day, Mom
I share my Mom with my sister
and two brothers. She's been my
Mom longer because I got
here first. Not that it really matters.
She always tells us she loves all
her children equally.
Mom lost her sight completely a
number of years ago.
Listening to my war stories, she takes
my side but can't see my art work or
how gray her 4 children have become.
Memorizing all her numbers, credit cards,
phone numbers, anniversaries, birthdays,
medical appointments. Mom carries on
with few complaints and lots of laughter.
Happy Mother's Day, Mom!
Labels:
childhood,
family,
humor,
retinitis pigmentosa
May 7, 2009
For Mother's Day
The way we were.......
As her parents would put it, my Mom is "smart as 12 colleges", good looking, and has a great sense of humor. All came in handy as, despite a bad marriage, she some how got her four kids raised and college educated with no money but stubborn determination, sacrifice and so much love.

She produced (in birth order) a published children's book illustrator
and author, a top administrator at a major university, a greatly
respected pediatric dentist and another town's beloved general dentist.
All of whom get along, enjoy each other's company and look out for each other.
She could definitely write the book.
All the time she was also losing her eyesight to Retinitis Pigmentosa.
An inherited disorder that slowly but surely destroyed her retinas
until she was blind.
She has not been able to see anything for 20 or more years.
Not my books or the beautiful faces of her grandchildren.
I joke that she has also missed seeing her middle aged children's
silvering and in some cases, receding, hair.
Despite everything, Mom lives her life with immense grace, courage
and always, humor.

Happy Mother's Day to my dear Mom.
Labels:
family,
retinitis pigmentosa
September 16, 2008

So much loving attention eventually loosened the charms from their original chain, but Mom saved the pieces.
As this necklace marks the beginning of my interest in beads, there is some satisfaction in having been able to restore it for my Mom. She was pleased, though now she can only "see" the necklace with her fingers as Retinitis Pigmentosa has stolen her sight.
Labels:
beads,
family,
jewelry,
retinitis pigmentosa
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